Links to Patient Groups

Listed below is a selection of organisations who exist to represent and help people who use healthcare and social care services.  By listing these groups IPS does not imply that it approves the content of their websites however the society believes it will be of assistance to IPS members and others wishing to find appropriate support organisations.

Cerebral Palsy Symptoms

www.cerebralpalsysymptoms.com

Cerebral Palsy Symptoms goal is to raise awareness globally for cerebral palsy and other birth injuries.  Cerebral palsy is the most common physical disability in childhood, with a child being born with CP every hour. 

Community Health Councils Wales

www.patienthelp.wales.nhs.uk

 This organisation will: provide help and advice if you have problems with or complaints about NHS services, ensure that patients views and needs influence the policies and plans put in place by health providers in your area, monitor the quality of NHS services from the users point of view, give information about access to the NHS.

Healthwatch England

www.healthwatch.co.uk

Healthwatch England is the independent consumer champion for health and social care in England. Working with a network of 152 local Healthwatch and other partners, the organisation ensures that the voices of consumers and those who use services, reach the ears of the decision makers. Healthwatch aims to develop new ways of engaging and informing people, especially those who sometimes struggle to be heard. They also believe that if they can get it right for those who need the most help, everyone will benefit from the improvements in service

Healthcare Inspectorate Wales

http://www.hiw.org.uk

Healthcare Inspectorate Wales is the independent inspectorate and regulator of all healthcare in Wales. HIW’s primary focus is on:

• Making a significant contribution to improving the safety and quality of healthcare services in Wales.
• Improving citizens’ experience of healthcare in Wales whether as a patient, service user, carer, relative or employee.
• Strengthening the voice of patients and the public in the way health services are reviewed.
• Ensuring that timely, useful, accessible and relevant information about the safety and quality of healthcare in Wales is made available to all.

Irish Patients Association

www.irishpatients.ie

The Irish Patients’ Association’s mission is to keep the patient at the centre of the healthcare system. It does this by advocating for the needs of patients to be paramount while working in partnership with health providers.

Leiomyosarcoma.Org

www.leiomyosarcoma.org

Leiomyosarcoma.Org strives to provide the most current and accurate information and news on causes and preventitive treatments for Leiomyosarcoma. Leiomyosaracoma is a type of malignant tumor that affects supportive tissues of the body.

Meningitis Now

www.meningitisnow.org  

Meningitis Now has a single focus – to stamp out all forms of meningitis and associated diseases. They fund pioneering research into vaccines and other methods of preventing meningitis. Every week, six families face the sudden tragedy of losing a loved one to this devastating disease.

MRSA Action

www.mrsaactionuk.net

MRSA Action aims to relieve the distress and suffering experienced by patients who contract healthcare associated infections and to raise the awareness of the general public in all areas relating to healthcare associated infections. MRSA Action UK works alongside other patient groups and charities, regulators and government agencies to help bring improvements and safe standards to the healthcare system.

Patients Association

www.patients-association.com   

The Patients Association is a healthcare charity which for nearly 50 years has advocated for better access to accurate and independent information for patients and the public; equal access to high quality health care for patients; and the right for patients to be involved in all aspects of decision making regarding their health care.

Patient and Client Council (Northern Ireland)

www.pcc-ni.net/

The council’s vision is for a health and social care service that is shaped by patients, clients, carer and communities. Its purpose is to be an influential and independent voice that makes a positive difference to the health and social care experience of people across Northern Ireland

Sepsis trust

www.sepsistrust.org

The UK Sepsis Trust recognises the scale and significance of the impact of severe sepsis on sufferers and their families. Although many patients return to a normal life, those who survive the condition may experience longstanding physical effects, and some suffer from psychological difficulties resulting from their prolonged illness. The trust provides support to patients and their relatives

TB Alert

www.tbalert.org

TB Alert believes that no-one should die from TB – an illness that kills 1.4 million people around the world each year, even though TB is curable. A world without TB is possible. When people can quickly and easily access the life-saving treatment already available; when services exist that are responsive to the needs of affected communities; when more effective tools and drugs for preventing, diagnosing and treating TB are made available - then we will be on track to realise our vision. 

The Lee Spark NF Foundation

https://nfsuk.org.uk/

The Lee Spark Necrotising Fasciitis (NF) Foundation helps those whose lives have been affected by necrotising fasciitis and other severe streptococcal infections and medical staff who are involved with investigating, diagnosing and treating NF.